Patient Voices
Elj Abid - Vitiligo
Elj shares his journey with vitiligo – from first signs and early challenges, to embracing his identity. He reflects on family, culture, and how healthcare professionals can offer better, more inclusive support.
Oliver Bromley - Neurofibromatosis
Oliver talks about living with Neurofibromatosis, the impact of surgeries, support from specialists, and why clear communication, mental health care, and kindness from professionals matter so much.
Marian Adejokun - Stevens-Johnson Syndrome
Marian tells her experience of surviving Stevens-Johnson syndrome, from her early symptoms to coma and recovery - she highlights the need for awareness, better patient support, and understanding.
Trina Harris - Pemphigoid and Pemphigus
Trina shares her experience of living with pemphigus vulgaris – from the life-threatening challenges of airways blistering to the emotional toll of her condition. She reflects on the experiences of others with pemphigoid and pemphigus, and highlights the importance of clear communication and joined-up care in helping patients feel supported and understood.