Patient Voices

Dee Lewis - Psoriasis

In partnership with Lilly and the British Association of Dermatologists

Dee reflects on living with psoriasis, from unpredictable symptoms and lost confidence to the need for personalised care, understanding, and meaningful reassurance from healthcare professionals.

Ellie Pond - Psoriasis

In partnership with Lilly and the British Association of Dermatologists

Ellie talks about living with psoriasis, from diagnosis to rebuilding confidence, sharing how visible symptoms affected daily life and why supportive, understanding care matters.

Andy Collinson - Atopic Dermatitis

In partnership with Lilly and the British Association of Dermatologists

Andy shares his experience of living with a chronic skin condition, highlighting its impact on daily life, relationships, and the need for timely, compassionate care.

Mandy Aldwin-Easton - Ichthyosis

Mandy talks about living with Netherton syndrome and ichthyosis, highlighting varied experiences, misconceptions, and the need for informed, compassionate care, research, and better treatment access.

Trina Harris - Pemphigoid and Pemphigus

Trina shares her experience of living with pemphigus vulgaris, highlighting serious physical risks, emotional impact, and the need for clear communication and joined-up care.

Marian Adejokun - Stevens-Johnson Syndrome

Marian tells her experience of surviving Stevens-Johnson syndrome, from her early symptoms to coma and recovery - she highlights the need for awareness, better patient support, and understanding.

Oliver Bromley - Neurofibromatosis

Oliver talks about living with Neurofibromatosis, the impact of surgeries, support from specialists, and why clear communication, mental health care, and kindness from professionals matter so much.

Elj Abid - Vitiligo

Elj shares his journey with vitiligo – from first signs and early challenges, to embracing his identity. He reflects on family, culture, and how healthcare professionals can offer better, more inclusive support.

Emma Rush - Vitiligo

Emma shares why vitiligo care must go beyond skin symptoms, urging clinicians to listen, recognise psychological impact, monitor related autoimmune conditions, and support patients with practical treatment advice.